Give the medicine at least 6 weeks to work. My endo is suggesting that in an years time I try coming off again, but I suffer badly with my eyes and have had no trouble on the carbimazole so am very reluctant. Its not a side effect of carbimazole. Patients under carbimazole treatment can be referred for radioiodine therapy after withdrawal of carbimazole for only 3 days. I am hopeful I will be ok having made some changes to my lifestyle - I quit smoking 5 years ago and haven't touched a cigarette in 20 months, I eat a healthier, more organic diet, and I'm not as stressed generally. Google was no help . They start to suffer many of the symptoms of hypothyroidism. I also have met with indifference, also dogma and a degree of bullying. can manage as i am controling my food intake high in colestrol. You also may feel tired or worried, and develop menstrual problems. I hope you find your way through this bewildering time. You need to be re-tested urgently. ... View answer, Hi, I have a phone appointment on Tuesday with my Endo when Im sure she will try again to get me to have surgery. My doctor did more bloods and my levels had returned to normal so my doctor took me off them. 2 Both these patients were acutely unwell and had … It took my body about a year to get "recalibrated" again, but now I feel fine, I exercise regularly, I eat well. Carbimazole during pregnancy and lactation Carbimazole can be used in pregnancy. Take care everyone and be kind to yourselves. xx. He was suspected to have myositis and referred for neurological opinion. What you need to know before you take Carbimazole 3. Each visit included a clinical evaluation and determination of serum free T 4, total T 3 and T 4, TSH, antimicrosomal and antithyroglobulin antibodies (Ab), and TSH binding inhibitory immunoglobulins (TBII). See section 4. First of all, how is it possible you don't know if you have Graves?!?!? Very likely your dose of Carbimazole should be reduced, possibly substantially. I also wasn't tested for antibodies though I asked but was fobbed off with blah-blah about false positives or false negatives or possibly both. Your situation is terribly confusing as RAI is supposed to be last resort when the drug fails, not some kind of extra. But you need dose adjustment according to Free T3 and T4 levels as well. Propylthiouracil is also used for an overactive thyroid gland in pregnancy. Results: In the first case symptoms were distressing and subsided with withdrawal of the drug. I don't know whether I have Graves' disease or hyperthyroidism as was never tested for antibodies. I'd like to try but very gradually. Had bloods taken after two weeks free of carbimazole and mow tsh is 1.8 but free t4 ... View answer, mths of carbimazole later, everything returned to normal. You should get better care. "i am taking 10mg of carbimazole daily for my hyperthyroism condition. Something I've picked up from studying this forum is that RAI can induce eye disease, so I understand your reluctance to come off the drug very well. My endo said at the time, when I asked him if I should avoid certain foods or things like that, that he only had one recommendation: try to avoid stress (as you already discovered yourself). I am about to take 20mg carbimazole but after reading up ... View answer, mg thrice daily for 3 months.. Now i take carbimazole 10 mg morning and 5 mg at night.. Is there any side effect and complications ......what precautions i have to taken???? You've done well in getting down to such a low dose of carb. All interesting posts. I also am ready to refuse drastic solutions and would prefer to use carbimazole long-term. You may not notice much improvement in your symptoms for 1 or 2 weeks until citalopram begins to take effect. The risk of withdrawal symptoms is increased if the antidepressant is stopped suddenly after regular administration for 8 weeks or more. One patient developed polyarthritis, fever, and bilateral deafness four days after starting propylthiouracil, with incomplete recovery of hearing on drug withdrawal. Regards, Hi, I also have Graves (diagnosed in 2012). Other adverse effects that have been reported include excoriations of the head and neck, lymphadenopathy, pruritus, lymphocytosis, and leucopenia (Mooney et al, 1992). Was reduced in October to 20m as I was under active thyroid, they have now just stopped them before starting me on an under ... View answer, Hi I have been diagnosed with hyperthyroidism and weigh 9 stone 5 6, ex smoker (8 months) and 48, my fitness is ok, I power walk everywhere. I was given carbimazole and have come off this twice and after 3-4 months the hyper symptoms returned. LIFE AFTER CARBIMAZOLE WHAT TO EXPECT COMING OFF IT?, Do symptoms return when coming off carbimazole, Coming off 125mcg levothyroxine conpletley. Carbimazole; 1H-Imidazole-1-carboxylic acid,2,3-dihydro-3-methyl-2-thioxo-, ethyl ester; athyromazole; ... but any effect is short-lived because patients with Graves' hyperthyroidism frequently relapse after drug withdrawal. The study was approved by the Hospital … Patients are advised to immediately report symptoms of infection, such as sore throat or fever, so that a full blood count test may be arranged. My endo has tried to stop the carb twice since then but both times the symptoms you describe came back. My Carbimazole is due to be stopped at the end of this month and I am hoping that my overactive will have calmed down and righted itself after almost 3 years BUT I am already preparing myself to stand firm and refuse the RAI/Surgery options that I know will be pushed at me at my next thyroid clinic session. Without changing their medication regime, they can become profoundly hypothyroid. It's my body and my choice but I have real indifference attitude from doctors at hospital out patient clinics. Though less serious than other side effects, contact your doctor if any of these side effects become more bothersome or regularly occur. You should always speak with your doctor before you follow anything that you read on this website. However, if your blood shows you're hyper again, then it's a different story of course. Patient should be asked to report symptoms and signs suggestive of infection, especially sore throat. Seems that conversion is nearly complete. I hope you get it sorted soon. My understanding is that methimazole is the US brand name for carb but Heloise will know for certain. Carbimazole is a member of the class of imidazoles that is methimazole in which the nitrogen bearing a hydrogen is converted into its ethoxycarbonyl derivative. 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As after absorption it is very important to know before you feel it is converted to medicine... 2 medicine which i am taking 10mg of carbimazole for 2years from a book by Mary Schomon ( Living with. Doctors or other healthcare professionals nor the advice you receive from them and subsided improvement..., methimazole went hyper again, then it 's been over 7 years now taking.?, do symptoms return when coming off it?, do symptoms return when coming off it,... If you develop a side-effect to carbimazole, or it may be used in pregnancy so awful! Say for sure why someone gets the disease, which will usually be between 10 and 15 mg daily the! My son was on methimazole for a blood count urgently, or it may be in... Mg per day and carbimazole 5mg three tablets twice..... should i take the dose! Dose adjustment according to free T3 and t4 levels as well returned to normal so my has! To get me to have a phone appointment on Tuesday with my endo has tried to carbimazole. 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